Friday after Thanksgiving was finally Josie’s MRI. We have been waiting, or dreading, this day to come so we can get more information about the tumors in her spine. It’s been weeks of blissful ignorance as her medical records didn’t have a diagnosis yet and that gave us time to bond. Other parents I have corresponded with have a term “scanxiety” as a scan of their child’s tumor is getting closer, and just before Thanksgiving I started to feel it. I would look at Josie playing and get a lump in my throat. I’d known her only 2 months, but I couldn’t even imagine losing her.
We had a translator meet us at the surgery center and we were both glad she was the same person we had last visit. She has become a great part of the team in explaining medical procedures to Josie. Her nervousness goes away as she hears her voice explaining what to do in Mandarin. We are so fortunate to have this help. Josie drank her happy juice and was nice and relaxed.
Our neuro-oncologist agreed to meet us the same day to go over results so we didn’t have to wait. What a gift! I was able to see Josie’s spine and the tumor that has wreaked so much havoc in her life. This tumor is responsible for so much loss and grief and pain and disability. I’d like to have a few words with it, but since it’s attached to my child, that may not be the best idea. This tumor is called grade 2 pilocytic astrocytoma most likely and while there is no cure, it can be managed quite well. It will require frequent scans and life time of decisions to be made. Our doctor is the right combination of hope and “get used to saying cancer” kind of reality. Cancer should never go in the same sentence as my child’s name. Josie’s cancer, Josie’s tumor…nope, I just can’t.
November just ended, which is also called adoption awareness month. As Josie was in the MRI room, my mind went to all the children waiting for a family. Many times their medical condition is the reason they end up in an orphanage and their medical condition makes them harder to place with an adoptive family. The labels are scary and a child with their unique gifts and talents can get lost behind the labels. We have a smart, funny, spunky little girl who happens to have lots of medical diagnoses. We also have world class medical care right in our backyard. It seemed like the perfect fit. And just 10 weeks later, I can’t imagine life without her.
Now on to the Adoption Talk Linkup!
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