When parents first learn their children have special needs or fall under the category of Special Education, it can be devastating. Once reality has settled in and parents have had time to grieve and accept the situation, it’s important they known their rights.
Under state and federal laws special education students are guaranteed certain in-school services. Parents should served as advocates for their children, being proactive and taking needed steps for ensuring their special needs kids receive the appropriate services.
Parents and Their Special Needs Children’s IEEs
Parents have the right to receive an Independent Educational Evaluation (IEE) for their special needs children for determining the type of special education program best suited for them. Typically, an IEE is done outside of a school system. Although parents can’t decide if a child qualifies for an IEP (Individual Educational Program), they can participate in the development of such as program.
Tips for Helping Special Needs Kids With Homework
Homework can be even more challenging for special needs kids, as well as for their parents.
- Help children with organizational skills. In addition to having an assignment notebook, parents of special education students need to help their kids organize their backpacks, books, notebooks and school supplies.
- Designate a homework zone. Don’t allow children to do homework in a different spot each day. Instead, set aside a space that’s designed only for doing homework and studying.
- Minimize distractions. Children with special needs are usually more unfocused than other kids so it’s important to get rid of distractions. Take the phone off the hook, turn off the television and eliminate other factors that are likely to interrupt a child’s attention.
- Work with teachers. Don’t depend solely on the child to know assignments, but regularly check with teachers and any internet information regarding the child’s daily homework. It’s also important parents are on the same page as teachers and not go overboard in overindulging them as sometimes parents of special needs children make too many allowances for inappropriate behavior.
- Be adaptable. Although getting homework done is important, sometimes it’s necessary to take into consideration outside factors that may hinder the child from doing his assignments. Also, ensure the homework is adjusted to the child’s needs. Usually, adjustments are made by special education teachers, but if it isn’t done, parents need to stand up for their kids.
Diet, Sleep, and Exercise for Special Needs Kids
A well balanced diet is vital for any child and is especially important for a special needs kid. Start teaching the child how to make healthy food choices by avoiding foods loaded with sugar, starch and salt early.
Sleep is imperative for academic success because when a child is tired it’s even harder to focus and learn. Sleep schedules, including bedtimes and wake-up times should be reasonable and consistent.
Exercise is important. Often exercise is an excellent prescription for children with learning disabilities as it helps them unwind and focus better in class. Besides ensuring the child gets plenty of exercise at home, parents should also check with the child’s teacher to make sure he’s included in an exercise program adapted to his needs.
Most of all, school success is important, but what’s more important is a child living a full and happy life. A parent’s continual encouragement, love and support can make all the different in a special needs child feeling confident enough to tackle new challenges and overcome each roadblock standing in the way of continued success.
How to find that one special person to take care of your child with special needs.
Do you need to get out of the house? Never mind that, do you want to get out of the house? Are your kids screaming right now as you are reading this, or are you one of the lucky ones that still get a nap time and are walking around your house like a mouse so as to not wake them up?
Having children is hard. Throw in a child with special needs and your life might as well be a circus. Sure you love them with all your heart, but you need a break. You deserve a break. So just get a babysitter. Yeah, right. I know that it is not that easy. There are so many more worries when you have a child with special needs and to trust a babysitter, for even just a couple hours, would be one more worry you don’t want to deal with right now.
So how do you choose? How do you make it easier on yourself? How do you find that special someone that will enrich your child’s life while you get to go to the movies for the first time in eight years? As a babysitter for eight years of two boys that have autism I have gained some knowledge I would love to share with you.
Change is hard. Change is hard for most people. However, for your child, change might be the worst thing in the world. Any kind of transition can trigger emotions you were not expecting. You already know this, I know.
What should you do about it? Introduce the change slowly. Or in your case, introduce the babysitter slowly. Please do not call someone out of the phone book at 4pm and ask them to be at your house by 6.
If you have a recommendation of someone great in your area start there. Call that person; see what kind of vibe you get. You should know within a couple of minutes of talking if this person will be a good fit for your child(ren). If you don’t have any recommendations, try the internet. I know it’s scary, but there are many services that prescreen candidates for babysitting. Most even do background checks! But again, start with a phone call.
If the phone call goes well, invite this person over to meet with you and your child. Don’t force any interaction, but let your child know what is going on and if possible to be present for most of the meeting. Ask your child after the meeting what he or she thought. If they are non-verbal, try to pick up on as many signs as you can gather. After all, you know your child; you know how to distinguish the good signs from the bad signs. If all went well schedule another meeting.
This time make it more about the child and their caregiver interacting. Maybe do a load of laundry. Wash the car. Lock yourself in your bedroom with your ear to the door. Whatever you choose to do with your semi free time you must be present, but not overbearing. See if these guys can get along without you. See if a relationship could develop. Watch the interaction from afar and imagine yourself not there… Do you like that picture? If you do you have probably started a good thing. If not, try, try again.
Finalize your choice
Everything seems to be a good fit, but how can you know for sure? How can you tell that the minute after you leave your child will still be in good hands? First, I would say listen to your gut. You all have one and it will probably give you more insight than anything. Trust it. If you want something more concrete to put your faith in here are some traits that every good babysitter should have:
• Patience. You know, that feeling you have at 8am, but somehow disappears by 1pm. Your babysitter should exude patience. You would pray this would never happen, but should your child be at his or her absolute worst you would want someone with enough patience to run a daycare alone.
• Energy. This person is going to be with your child for the next few hours, and my guess is that you don’t want someone who will only get up to get the remote. Make sure your new babysitter shows you that he or she is energetic and willing to have a tea party or be Darth Vader for a while.
• Common Sense. You want someone with a good head on their shoulders. If your child is on a special diet make sure this person could figure out that butter is also dairy, and there is gluten in crackers. Especially if you have a separate stash of goodies hidden for yourself!
• Positive. You want someone happy. Someone that will smile and focus on all of the wonderful things your child does when they are together. Your child might be reaching milestone after milestone, or it might have been three years since they reached their last goal, but you need someone who will give lots of praise and encouragement.
• Love. Lastly, you need someone who is warm and loving. They don’t have to be in love with your child the second they meet him or her, but to avoid 20 different babysitters (and transitions), you will want someone that could have a long term relationship with your child. It may take your child months to really become comfortable with their new babysitter and you will want someone willing to stick it out… for both of you.
There. Now you have everything I can give you. Start doing your homework so that someday soon you can get out of the house… and know that everything back home is under control.
Eve was granted a wish through the Make A Wish Foundation earlier this year. We met with our wish granters and we discussed a few different options based on Eve’s likes and abilities to participate. One place that kept coming up in the discussion was Give Kids the World village, a magical place in Orlando that welcomes families from many different wish organizations. The village is wheelchair accessible, fun and we would have all the comforts of home vs a hotel a room. Give Kids the World Village is more than just a place to stay, they have parties, things to do and places to eat. Take a look at this brief video to get a taste of this amazing place.
As part of our stay at the Give Kids the World Village, we would also get tickets to theme parks and other Florida attractions to make our stay fun and exciting. Since Eve loves aquariums and large animals, we also talked about a trip to the Clearwater Marine Aquarium during the week. We were so excited to hear that Make A Wish approved this wish and our entire family was invited to go. They are taking care of all the details, even the smallest ones so we can just enjoy family time. Eve is the happiest when we are all together and this trip will allow time away from the normal busyness of life. I don’t know that we have had a week without medical appointments or therapies this year, so this week will be great respite for all of us.
Since I am a planner by nature, I have found a few ways to keep things organized in a low key way. We are a family of 8 so we do need to plan a bit to give every child a chance to experience something fun. If you are planning a trip to Give Kids the World Village, maybe this will help you too:
These are my favorite apps for planning as well as while in Orlando. I tend to have a good connection at the parks but you may want to jot down notes if you are unsure.
Happ4Hotels: enter GKTW as the hotel code to get information about events, entertainment and other village news. This app will help you in planning which nights to enjoy parties at the village and when to stay late in the parks.
My Disney Experience is all things Walt Disney World. Make dining reservations, check park hours and even find photopass photographers.
Universal FL is an app for Universal Studios. Out the apps I looked out, this one is free and most user friendly.
Nativoo Orlando if you plan to dine outside the theme parks (or even in the theme parks), this is a great app for discovering Orlando area.
Give Kids the World Village
Give Kids the World Village website has videos and information about the village. I looked through the village guide to get an idea what was in our villa and what activities my children might enjoy. I hear the Christmas party is awesome and it’s held every week.
Facebook groups Make A Wish Disney Trips, Disney Planning Mamas Wish Trip, Disney Wish Trips for Special Needs are great ways to talk to other parents about their Disney and Universal Studios wish experiences. And it’s nice to connect with other families who understand the unique journey we are all on.
Disney Food Blog: food is half the fun at Walt Disney World! Learn about restaurants and best counter service spots before you go. And snacks, don’t forget about the snacks. Dole whips and mickey bars and turkey legs. Yumm!
Kenny the Pirate: where can you find your favorite character? This website will tell you where the characters are and tips on how to see them. They also have helpful crowd calendars which can help you decide which parks to choose while you are staying at the village.
Make A Wish gave us a rough idea on what to expect, but we received the final details about a week before our trip at a send off party. If you need to know how much to expect in spending money, flight or rental vehicle details, your wish granter can help you with that. Each wish organization is different in how they handle aspects of travel. Enjoy the fact that they will take care of most of the details, but it’s also nice to know there is someone taking care of things behind the scenes.
Give Kids the World also has people who customize and help you with your stay there. We received an email from the itinerary fairy, we spoke about our dietary needs and decided what parks might be fun to visit.
There are tons of Disney and Universal resources out there. If you have one that made your trip easier, let me know in the comments!
Two things that don’t seem to go together very well: self care and special needs parenting. I know moms who seem to do self care well but unfortunately I am not one of them. I was sitting at our therapy waiting room reading a book and I happened to laugh out loud (Jen Hatmaker’s new book For The Love was the culprit) attracting curious looks.
It started a conversation about how little time moms of children of medical/special needs have to themselves. I don’t read books except when I am in waiting room. “I don’t take good care of myself” one mom confessed. We all nodded in agreement.
This month my husband and I are celebrating our 20th wedding anniversary. That prompted a time a reflection and needed changes in many areas of our lives. Self care rose to the top as we want to be able to give our children present, energetic parents. An empty cup has nothing to pour into others.
We are not able to go on long overnight trips, but we decided to do a short getaway. No distractions, no schedule and just time together. It will be marvelous! I feel like if I don’t plan it, it will never happen. So more things will be planned and scheduled. I hope this will be a start of intentional self care.